March 20, 2013

Anniversary and something good at last

Two years since Marks accident, where has the time gone. We moved back to the UK, bought a house and made all the adaptations to the house for Mark. Mike, Eve and I have decorated nearly the whole house and this Spring I've started on the garden, trying to knock that into shape.

We've had highs and lows, more lows than highs because of Marks deteriorating condition and often feel we've been going backwards over the last year.  When Mark was first moved to Pinderfields one of the peer support guys told us it would be 2 years before we started moving on with our lives and I was shocked at the statement. Me in my usual attitude to life of just keep moving forward whatever is happening and don't look back was severely dented by his statement. Well the two years have passed and sometimes I just don't know where the time has gone. I don't look back over those two years, it's too raw still, maybe in another couple of years I'll be able to read back and consider the journey we've taken with a more positive eye.

Tonight we have Kev, Linda and Flash staying, three people have been through the journey with us along with all our fantastic friends scattered around the UK and the world. I can safely say we couldn't have done it without you. Thankyou xx

The good news, we finally have Marks operation date confirmed as April 10th. It's only 3 weeks away, as much as we've been fighting for this for over a year, it's also very very scary. It's a major operation taking the fixture out and depending on what the surgeon does after it has been removed will depend on what state Mark comes out of it. He may end up with less arm and hand movement, it may not even fix the pain issue, but knowing that just shows how badly he wants this op anyway because of the pain he's constantly in now.
We have a pre-op meeting on April 2nd so I will catch you all up after that.

March 06, 2013

Same old, same old ....

I've been reminded by a number of friends that I haven't written a blog for some time and why is that ...... well partly because I wonder what I have to write about that's any different from what's gone before .... Mark spends a great many days in bed with pain, we have bladder problems, bowel problems, a pressure sore on his heel and fighting to keep them from his bum cos he's in bed so much and still haven't got a date confirmed for his operation.

We're coming up to the two year anniversary of his accident, at which time everyone told us that life would be moving on by then ..... well it's not, it's not even on hold any more, it's just getting worse. I wish I could write about something good happening for him but I can't.

It's demoralising and I wonder that anyone wants to read the same old message .... so that's why I haven't written the blog .... sorry.

I'm working like a demon in the garden to keep my sanity, the Sunroom is FULL of little veg plants raised from seed so I guess the garden will benefit frommy efforts and I won't feel like my days are completely wasted.

We do try to keep positive, some days are harder than others.