The best way to describe where we've been is hiding. The weeks since Mark came home from hospital haven't been the easiest. Mark has had a day here and there where he's felt OK, he's even had a few days out. He's been up for a short while while visitors are here but in the main he's spent a lot of time in bed in pain.
We had high hopes for the operation, we had a lot pinned on it curing the worst of his pain, the horrible pain that makes him reach for the oramorph and take to his bed for a few days at a time. We've waited patiently to see how the op had changed all that, but the reality is it doesn't look like it has. I haven't felt like writing about anything negative, living with it is hard enough. I really wanted to tell everyone that we've had a leap forward and Mark was suffering a lot less pain, but I can't. When Mark is not in the grip of that pain it is obvious that his body is still settling down from the op. That will take some time still and now and then he does feel different, so there's still hope, but we both think it's slim at this stage.
On top of that, he's on his second lot of antibiotics for a chest infection, they take a lot longer to clear when you're stuck in bed and he's on a course of antibiotics for a urine or kidney infection, they're not sure which it is. As soon as Mark starts on antibiotics it makes his bowels go crazy, so there's a lot of changing of clothes and washing going on - I'm sure I don't have to explain that any further, your imagination will do the rest!!
I have to finish with something good ..... my veggies are growing like mad and I'm starting to eat my early harvest, every minute of my spare time is spent in the garden and the work helps keep my slim grip on sanity.
We had high hopes for the operation, we had a lot pinned on it curing the worst of his pain, the horrible pain that makes him reach for the oramorph and take to his bed for a few days at a time. We've waited patiently to see how the op had changed all that, but the reality is it doesn't look like it has. I haven't felt like writing about anything negative, living with it is hard enough. I really wanted to tell everyone that we've had a leap forward and Mark was suffering a lot less pain, but I can't. When Mark is not in the grip of that pain it is obvious that his body is still settling down from the op. That will take some time still and now and then he does feel different, so there's still hope, but we both think it's slim at this stage.
On top of that, he's on his second lot of antibiotics for a chest infection, they take a lot longer to clear when you're stuck in bed and he's on a course of antibiotics for a urine or kidney infection, they're not sure which it is. As soon as Mark starts on antibiotics it makes his bowels go crazy, so there's a lot of changing of clothes and washing going on - I'm sure I don't have to explain that any further, your imagination will do the rest!!
I have to finish with something good ..... my veggies are growing like mad and I'm starting to eat my early harvest, every minute of my spare time is spent in the garden and the work helps keep my slim grip on sanity.
