Oh yes!! On the days he can make it there he's into everything and countermanding every decision I've made and generally talking the ears off everyone there who is supposed to be working. Did you expect to hear anything different ... I thought not haha.
On the days he feels ok, which seems to be every other day, he's quite good. On the bad days he spends most of the day in bed. It's obvious they've not got his new meds quite right yet but another visit to Prof Richardson of the Pain Team at BRI might help that. We've asked the Doctor to make a referral, but who knows how long that will take. Still no news yet from Birmingham. He's also wearing a brace round his middle again which seems to give some support to his back and keep the serious problem at bay a little.
Carers did turn up eventually, we're back to the same 'Intake Team' provided directly from Social Services again, which is good because they are good. I'm happy to go out early and know they'll take care of him. When I do that Janet feeds him lunch then he comes over to the house if he's able. If not he stays in bed.
House is really coming on now, we've finished all the trashing and now putting it back together in it's new form. The alterations have made a massive difference in Marks ability to get around and therefore feel comfortable for him. Got to keep him in control though, he'd spend every penny we have. We need emergency money for times when he might have to go back to hospital and they stop his benefits again. I don't know how they expect anyone with a house and bills to manage, the bills keep coming in even when he's in hospital.
On a lighter note, I had a mini break and had a night away with friends from Lefkas, Paul and Sue. I met them in Stratford on Avon and joined them on a night out at the theatre. Even a little break like that is brill so thanks and hugs to you guys, very much appreciated.
A couple of piccies of the house ....
On the days he feels ok, which seems to be every other day, he's quite good. On the bad days he spends most of the day in bed. It's obvious they've not got his new meds quite right yet but another visit to Prof Richardson of the Pain Team at BRI might help that. We've asked the Doctor to make a referral, but who knows how long that will take. Still no news yet from Birmingham. He's also wearing a brace round his middle again which seems to give some support to his back and keep the serious problem at bay a little.
Carers did turn up eventually, we're back to the same 'Intake Team' provided directly from Social Services again, which is good because they are good. I'm happy to go out early and know they'll take care of him. When I do that Janet feeds him lunch then he comes over to the house if he's able. If not he stays in bed.
House is really coming on now, we've finished all the trashing and now putting it back together in it's new form. The alterations have made a massive difference in Marks ability to get around and therefore feel comfortable for him. Got to keep him in control though, he'd spend every penny we have. We need emergency money for times when he might have to go back to hospital and they stop his benefits again. I don't know how they expect anyone with a house and bills to manage, the bills keep coming in even when he's in hospital.
On a lighter note, I had a mini break and had a night away with friends from Lefkas, Paul and Sue. I met them in Stratford on Avon and joined them on a night out at the theatre. Even a little break like that is brill so thanks and hugs to you guys, very much appreciated.
the kitchen, other than the door way, was a good size for Mark, but the dining room was really small so by the time we put a table and chairs in there Mark couldn't move around it at all ...
now we've opened it up there's plenty of room for Mark to cook ?????
and move around the dining area
Since those were taken all the new plastering has been done and it's started looking like a house again instead of building site. We still haven't moved on with the grant for wetroom or ramps, but intend moving in anyway and managing the best we can. No matter what peoples needs are it doesn't alter the snails pace of the 'the system'.
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