Sunday: Although we are again facing an uncertain outcome to Marks condition, we are continuing with trying to put some normality into our lives and on Sunday we spent the afternoon with friends John and Janet, Dave and Chris having a BBQ. The weather was lovely, the food was brilliant and the company was fantastic - thanks guys, it means a lot to be able to do the occasional thing to make us feel 'normal' again.

Monday: Mark had a visit from his Doctor who informed him that the Consultant, Neurologist and himself were having a Pow Wow about his condition. They're taking the situation seriously and he'll get to know tomorrow what they intend to do about his syrinx. He continues to suffer considerable pain in his neck and the spasms have returned although not in quite the severity, even though all his drugs have been increased. We can only wait to see if the syrinx shows any sign of worsening his condition.